Matthew Zachary
Patient Advocate
OffScrip Media
Julie Walters
Founder & Executive Director
Raremark
Gaten Matarazzo
Actor
David Rose
Business Developer
Rare Revoloution
Samuel Agyei Wiafe
Founder
Rare Disease Ghana Initiative
Kelly du Plessis
CEO & Founder
Rare Diseases South Africa
Jana Popova
Executive Committee Member
EAMDA
Meghan Waldron
Ambassador
Progeria Research Foundation
Tito Oye
Columnist
Sickle Cell Disease News
Dara Woods
Co-Founder
HHT Ireland
Earl Cole
CEO
Perthes Kids Foundation
Nicola Miller & Rebecca…
Co-Founders
Teddington Trust
Jen Horonjeff
Founder & CEO
Savvy
Taylor Kane
Founder & President
Remember The Girls
Jessica Minhas
Founder
I'll Go First
Monica Weldon
CEO & Founder
Bridge the Gap
Nicole Boice
Founder
Global Genes
Sam Clarke
Film Maker / Adventurer
Scrap The Mask
Nick Sireau
Co-Founder
Findacure
Christine Waggoner
Co-founder & President
Cure GM Foundation